It’s been a week of ups and downs, lots of good stuff, sad news and a few crises, so quite emotional at times. Hopefully you want to know a bit more, so here’s my reasons to be cheerful for this week.
Healthy Twix Bars in minutes
We’re totally addicted to the Happy Pear recipe for “Twix” bars thanks to Bumbles of Rice, but totally fed up with the amount of time it takes to make them! So one frustrated afternoon I used this method instead:
Read more here
I’ve been thinking about my Mum again, perhaps because Mother’s Day was last Sunday in Ireland and the UK, but there were other reasons too: sad news about other people’s parents and friends, and the screening of a new version of the Cornish historical drama Poldark, that I couldn’t bring myself to watch, because I watched the original series with my Mum in the long ago 1970s. She sadly died before this blog was born, though we’d been losing her one memory at a time for a number of years, and while the grief was knife-sharp at first, it has faded over time to a dull ache. But now and again something happens that makes it flare up and catch me unawares.
Read more here:
Another year, another St Patrick’s Day, and this one was supposed to be extra special for Smiley. I’d forgotten to apply for a space in the disabled viewing area for the Dublin Parade, so I was looking for something else to do on the day. I actually enjoy the smaller parades, they’re usually just as much fun, a lot less stressful and you can see everything, even without special viewing areas. So I got complacent, but more of that later.
Find out what happened here:
This is part two of a planned series of posts about our experience of the transition from special school to adult services for my middle daughter who finishes school this year. She has severe physical and intellectual disabilities and realistically will need twenty four hour support for the rest of her life. Most young adults like Smiley attend “adult services”: training centres for the more able and day centres for the rest. I know as little about them as you do, but I am trying to find out. There is a process to be gone through, and I plan to blog about it here, but without using too much jargon or pointing too many fingers, as I imagine that most of the large organisations that provide services for children and adults with disabilities operate in a similar way.
I’ve already discovered a few depressing things about adult services, and the second meeting just added to this list. The real situation is as clear as mud.
Read more here
It’s Thursday again, so it’s time for my reasons to be cheerful, hope you have some too.
Free Medical Services
In Ireland we don’t have a National Health Service, we have a multi-tiered health service, with some people paying almost nothing, some people paying a little, and some people paying a lot. Now that Smiley is an adult with her own small income, she is finally entitled to free health care.
Because I can’t blog about it. Because my world has shifted. Because I feel lost. Because I don’t know where to turn. Because those who are supposed to be helping me, seem to be making things worse.
More reasons here
It’s been another week of rearranging, cancelling, negotiating and apologising, so good to look for reasons to be cheerful!
And this week it’s all about dress dilemmas and blogging: the one thing I don’t have to cancel, in fact it fills up any unexpected time at home. Once I’m in the mood, anyway.
Read this week’s reasons to be cheerful here
Hearing the phrase ‘next year your child will be starting in adult services’ is guaranteed to strike fear into the hearts of most parents of disabled children. Yes, you probably had to battle the system to get your child a decent education, but with any luck those battles are in the distant past at this stage, and now you’re older and wearier and faced with the possibility of doing it all again.
It’s all a big secret you see.
Find out more here